Saco business raising awareness of disorder
More public awareness for Chiari. Click on the link to watch the news story out of Saco, Maine.
Benefit held for boy with Chiari malformation
SACO, Maine –
A business in Saco is helping to raise money and spread awareness about a neurological disorder.
Boston Cochrane has Chiari malformation, which is when the bottom of the brain crowds to the top of the spinal cord.
Over the weekend, Massage Solutions on Beach Street celebrated the one-year anniversary of a surgery to help his condition.
The even was called, “A Day of Healing.”
The hope is to raise awareness and help fight the disease and give back to the community.
“It’s scary to go forward with brain surgery on your child. But the support from the community, our church it’s just been amazing and all of these people have come out to raise money and awareness and it’ touching, it’s moving,” said Chani Cochrane, Boston’s mom.
A walk to benefit Chiari is being planned for September.
Ok, those who wondered, my son has spina bifida w/ hydrocephalus (shunted) w/ chiari malformation of the brain & a submucous cleft palate.