Category Archives: Other Chiari Stories

Bakersfield teen seeks surgery for brain disorder

BAKERSFIELD, Calif.(KBAK/KBFX) — Jamie Tudor doesn’t get out of the house very often. In fact, the 13-year-old girl tries not to move around much. “I read and do my homework, watch movies – not very many things,” she said. “I have less friends, because I don’t get out a lot.” Any movement for Jamie can mean nausea, back pain, headaches or neck pain. “My back pain is in the middle. It feels like I’m being...

Chiari and Syringomyelia benefit raises nearly $4,000 – YNN, Your News Now

Chiari and Syringomyelia benefit raises nearly $4,000 – YNN, Your News Now. A few dozen people walked the Sangertown Square Mall in New Hartford on Saturday to raise money and awareness for two rare brain abnormalities. There are no cures for the disorders, only uncomfortable surgical treatments that involve drilling into patients’ heads. Our Andrew Sorensen reports on the ailments and what some people are doing to fight them. Click on the link above to...

Mrs. Myrtle Beach fights through painful condition to become an inspiration

Around the Forest | Mrs. Myrtle Beach fights through painful condition to become an inspiration – Neighbors – TheSunNews.com. Here is yet another story of a fighter, who battled years of classic Chiari symptoms and misdiagnosis.  Laura Schaefer of Myrtle Beach, SC, continues to fight, and even competed in the Mrs. South Carolina 2012 pageant!...

Stephanie’s Story

Stephanie’s Story of Chiari Survival My name is Stephanie Barzellone. I am the daughter of Texas State Representative Jerry Madden. I am a wife, mother of four children, and I am also a Chiarian. My journey with Chiari malformation started on June 2, 2008, when I was injured in a work accident. The saga includes multiple visits and repeated examinations by a variety of physicians over a two year period. Three general practitioners with exams...