Stephanie’s Story of Chiari Survival My name is Stephanie Barzellone. I am the daughter of Texas State Representative Jerry Madden. I am a wife, mother of four children, and I am also a Chiarian. My journey with Chiari malformation started on June 2, 2008, when I was injured in a work accident. The saga includes multiple visits and repeated examinations by a variety of physicians over a two year period. Three general practitioners with exams...
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Jennifer’s Chiari Story
We would like to thank Jennifer Espericueta for sharing her story with us: My Chiari Story Jennifer Espericueta 34 year old female, stay at home mom, former high school teacher After regular visits to a chiropractor for 2 years for neck pain after the birth of my 2 children I finally visited a pain specialist. That was when I was diagnosed with Chiari Malformation in June 2010. I was shocked; this was something I had...
Shannon’s Story – Chiari the Killer
This is the story of Shannon Hudson Terry and what might have been had she had this information earlier. Chiari is a highly undiagnosed condition and is widely unknown and misunderstood. The longer you delay a Chiari diagnosis, the greater chance of additional neurological damage. Shannon’s Chiari diagnosis was over 5 years after the onset of symptoms, which initially included severe headaches and anxiety, later followed by depression. After she began to lose the use...
Bakersfield teen seeks surgery for brain disorder
BAKERSFIELD, Calif.(KBAK/KBFX) — Jamie Tudor doesn’t get out of the house very often. In fact, the 13-year-old girl tries not to move around much. “I read and do my homework, watch movies – not very many things,” she said. “I have less friends, because I don’t get out a lot.” Any movement for Jamie can mean nausea, back pain, headaches or neck pain. “My back pain is in the middle. It feels like I’m being...
Bakersfield teen seeks surgery for brain disorder
BAKERSFIELD, Calif.(KBAK/KBFX) — Jamie Tudor doesn’t get out of the house very often. In fact, the 13-year-old girl tries not to move around much. “I read and do my homework, watch movies – not very many things,” she said. “I have less friends, because I don’t get out a lot.” Any movement for Jamie can mean nausea, back pain, headaches or neck pain. “My back pain is in the middle. It feels like I’m being...
Bozeman boy’s tragic death brings life to others
Posted: Saturday, April 7, 2012 12:15 am JODI HAUSEN, Chronicle Staff Writer | 10 comments When Aria Autry found her 6-year-old son’s muddy footprints on the hallway stairs, she didn’t get mad. And when she found the boy’s name, Bryce, scrawled in yellow crayon on his sister’s bedroom door, she wasn’t angry. The blemishes around the Bozeman home she shares with her husband, Ian, and their five other children were reminders of the gregarious and inquisitive...
Chiari and Syringomyelia benefit raises nearly $4,000 – YNN, Your News Now
Chiari and Syringomyelia benefit raises nearly $4,000 – YNN, Your News Now. A few dozen people walked the Sangertown Square Mall in New Hartford on Saturday to raise money and awareness for two rare brain abnormalities. There are no cures for the disorders, only uncomfortable surgical treatments that involve drilling into patients’ heads. Our Andrew Sorensen reports on the ailments and what some people are doing to fight them. Click on the link above to...